E-Therapy: Case Studies, Guiding Principles, and the Clinical Potential of the Internet
Robert C Hsiung, Editor
Overview Excerpt Table of Contents
Chapter
1: Introduction
The
Clinical Potential of the Internet
Robert
C Hsiung, MD
Five
curious blind men visited the palace of the Rajah to learn the truth
about e-therapy. They were taken to his study, where he kept his
computer (the Rajah’s computer had screen reader and voice
recognition software installed, so it was usable by the blind men).
The
first blind man reached out to the keyboard and used a search engine
to look up the side effects of Prozac. "E-therapy is
comprehensive like an encyclopedia!" he declared.
The
second blind man used the computer to send an expert psychiatrist a
question. "E-therapy is personal like Dear Abby," he
announced when he received an answer.
The
third blind man e-mailed his therapist to tell her he had had another
dream about elephants. "I was right," he decided. "This
is having access to my therapist whenever I want."
The
fourth blind man talked with a psychiatrist in far-off Arizona. "What
we have here," he said, "is a telephone."
The
fifth blind man went into a chat room and had a session with a
therapist who did not know he was blind. "I believe e-therapy is
like a magic carpet that takes me to a place without stigma," he
said. (adapted from Blubaugh)
It
seems preposterous that e-therapy could be all these things. But
different parts of it have evolved to specialize in different
functions, sometimes with incongruous results. This book reflects its
subject and may itself be a little ungainly, but at least does not
weigh a ton.
Information
On Line
Robert
Kennedy, in "The Information Exploration in Mental Health,"
provides an overview of the initial use of the Internet in mental
health: to exchange information. He reviews the development of the
Internet from a U.S. military project to a mass medium and addresses
both its technical and sociological aspects. He discusses the two
sides of information exchange: what consumers are looking for and
what e-publishers like Medscape (www.medscape.com) are providing. He
explains how to search effectively for information and how to assess
the accuracy of the results. He concludes by looking into the future
of on-line information, where he sees distance learning, digital
health records, XML, personalization, and the lessening of
information overload.
The
Web is disorganized. It is an example of what could be called the
Second Law of Infodynamics: information tends toward a state of
randomness (Klyce, 2001). Organization and structure require the
input of energy. Kennedy refers to this as Phase II of the evolution
of information transfer. Writers have to work to organize their
thoughts; "webmasters" have to work to organize their Web
pages; and someone has to work to organize Web sites. Most users
achieve some organization with their "bookmarks." Many also
rely on what Kennedy calls the "catalog" type of search
engine, essentially the bookmarks of third parties. Many use a
combination of these approaches. The more extensive—and
organized—their bookmarks and the catalogs they use, and the
more skilled they are at using what Kennedy calls the "index"
type of search engine, the more helpful users will find the Web.
Another aspect of the filtering process involves not relevance, but
quality. Quality can also be assessed by users themselves or by third
parties. Third parties may be biased, however, so the more
information-literate users are, the better. As Terry (chapter 9) puts
it, utility is based on a series of factors: breadth of information,
search efficiency, and quality of information.
Case
Study: Ask the Expert
In
"The Internet ‘Expert’: Promise and Perils,"
Ronald Pies presents his Ask the Expert Web site
(www.mhsource.com/expert), at which he responds publicly to questions
submitted by consumers and professionals. His individualized
information service is a hybrid between general information like that
discussed by Kennedy (Chapter 2) and individual treatment like that
provided by Stofle (Chapter 6). The key is to provide information but
not advice, education but not treatment, and thereby to avoid
creating a doctor-patient relationship (see Chapter 9). At most, Pies
provides "heuristic," as opposed to "prescriptive"
or "proscriptive," advice. The distinction is between
suggesting a way to solve a problem and suggesting a solution to the
problem—the classic difference between teaching someone how to
fish and giving them a fish. There are exceptions to every rule,
however, and Pies does give prescriptive and proscriptive advice in
certain circumstances, for example, when it is common sense, in cases
of clear malpractice by a treating professional, and in
life-threatening situations.
The
site says it is "intended . . . not as a substitute for . . .
urgent medical evaluation, treatment or consultation," but falls
short of saying it should not be used, period, in crisis situations.
That sort of use could be considered non-compliance, but Yellowlees
(Chapter 7) tells us that the patient is becoming more autonomous and
the provider-consumer relationship more egalitarian and that
professionals need, in turn, to become more flexible, and Pies
demonstrates how he still does try to help in those situations.
Pies
gives us six actual examples of questions and answers. They are
mini-case studies in which he shows us not only what he does, but why
he does it. He concludes by touching on the personal satisfaction he
derives from this work. It is a change of pace from his usual office
practice, many visitors are grateful for his help, and those efforts,
as do other forms of "media psychiatry" (American
Psychological Association, 2001), go much further than they would in
person.
Although
what Pies is providing at his site is not therapy, he nevertheless
uses his therapy skills. He attends not only to the questions that
are submitted, but to those that are unspoken; he approaches each
interaction with specific goals; he keeps in mind the real-world
lives of his visitors; and he anticipates both how they might feel
and what they might do in response to his responses. He is aware of
both the promise and the perils of this psychoeducational form of
e-therapy. He is an expert in terms of not only what he knows, but
also how he deals with people.
Case
Study: Adjunctive E-Mail
In
"Using E-Mail to Support the Outpatient Treatment of Anorexia
Nervosa," Joel Yager describes how his use of e-mail has evolved
from scheduling appointments to being an integral part of the
treatment he provides. As more and more of his patients started to
use e-mail, and especially after he moved from Southern California to
New Mexico, he realized that e-mail could augment the treatment and
consultation he provided. He presents cases, with e-mail transcripts,
to illustrate seven ways in which e-mail may be incorporated into
treatment directly and, through consultation with other
professionals, indirectly. It may be used to enhance weekly sessions,
to monitor treatment from a distance, to monitor behavior daily, to
smooth a transition between care providers, to communicate with
family members, to co-manage a patient, or to intervene in a crisis.
The e-mail transcripts provide concrete examples of both how patients
use e-mail and how therapists can be responsive, supportive, and
therapeutic using just text. This is another case of the flexibility
that Yellowlees advocates.
Yager
then discusses the potential positive and negative consequences of
the adjunctive use of e-mail and the possible directions future work
might take. Incorporating e-mail into treatment may increase the
frequency of therapist-patient contact and therefore the "object
constancy" (Mahler, Pine, & Bergman, 1975) of the therapist.
The patient may feel the therapist is more "present" (see
Chapter 6) and provides more of a "holding environment"
(Winnicott, 1953). The patient may more easily initiate contact and
may therefore feel both more cared about and more empowered. Because
the communication is on line, the patient may feel safer and
therefore less inhibited (Stofle, Chapter 6; Ainsworth, Chapter 10);
because it is "asynchronous" (not in "real time"),
the patient may worry less about possibly intruding. The patient may
engage "while the iron is hot" and may share more
meaningful material earlier in the process.
The
only actual drawback Yager found was resentment at being expected to
"report in." A potential drawback was getting less
information via e-mail than in person, but in these cases, e-mail was
an adjunct to and not a substitute for contact in person. The
potential for a breach of confidentiality was the greatest with his
patient A because at one point she shared a home computer, but Yager
was aware of the situation and protected her privacy by taking pains
to be discreet—as he would have had he met with the patient and
a family member in person. Yager finds his adjunctive use of e-mail
accepted by his patients and his colleagues and not too demanding of
his time. He does not charge for e-mail services. Therapists could,
however, bill for adjunctive on-line contact directly, as a distinct
procedure like a telephone call (Current Procedural Terminology (AMA,
2001) code 99371, 99372, or 99373), or indirectly, by "bundling"
it, like an office expense, into other charges.
Yager
notes that patients with eating disorders tend to be compliant, but
shy, so they may be especially likely to make use of and to benefit
from this type of e-therapy. For any patient with a behavioral
problem, frequent self-reports by e-mail would help them to confront
those behaviors more consistently. In general, which patients are
likely to benefit from which e-therapy techniques needs more study.
One size does not fit all any more on line than it does in the
office; even Yager was not able to engage his patients E and F by
e-mail.
Case
Study: Community Telepsychiatry
In
"A Model Community Telepsychiatry Program in Rural Arizona,"
Sara Gibson, Susan Morley, and Catherine Romeo-Wolff share their
experiences with NARBHA Net, the Northern Arizona Regional Behavioral
Health Authority (www.rbha.net) videoconferencing system that
connects—via a central hub—11 rural mental health care
agencies in a 62,000-square mile area, Arizona State Hospital, the
University of Arizona, the state Department of Health Services, and
two other regional networks. Gibson provides all outpatient
psychiatric services to one 11,000-square mile county from the hub,
over 150 miles away. She never meets those patients in person, yet
diagnoses their problems and prescribes their medications. She cannot
assess some patients adequately that way, but she refers them to
local resources, and they are no worse off than before.
One
of the advantages of rural areas is that people have room to spread
out. As Yager (Chapter 4) also found when he moved to Albuquerque,
one of the disadvantages is that resources are more difficult to
access in person. NARBHA staff sometimes used to take an entire day
to attend a 30-minute meeting. Electronic communication can bridge
those distances. NARBHA Net is an electronic network, but it forms
the basis for human networks (see also Chapter 2) that include
outpatient clinicians, inpatient clinicians, subspecialist
consultants, school personnel, patient advocates, families, and, of
course, patients themselves. Gibson, Morley, and Romeo-Wolff estimate
that in 1998-99, 6500 hours of staff travel time and $100,000 in
expenses were saved. And of course there are no automobile accidents
in "cyberspace." Private insurers pay for the services
provided by the telepsychiatrist at the same rate as services
provided in person (but do not cover the services simultaneously
provided in person by other professionals at the rural clinics).
Gibson, Morley, and Romeo-Wolff found no significant differences in
medication costs or hospitalization rates between the telepsychiatry
patients and NARBHA patients overall.
In
1999, NARBHA Net was used for 2200 videoconferences, 90% of which
were for clinical purposes. To maximize video quality and
confidentiality, they transmit at 512 kilobits per second (kbps) over
private lines. A network is a many splendored thing, and NARBHA Net
is also used for voice and data applications and provides educational
and administrative benefits.
Feedback
from both patients and staff in the rural clinics has been
overwhelmingly positive. No patients have refused telepsychiatry
services. In fact, the patients have tended to like telepsychiatry
more than the staff has, and the price of success has been heavy
demand. Gibson, Morley, and Romeo-Wolff share some tips on how to
help patients "forget the machine," to make the interaction
as much like interacting in person as possible and to maximize their
feeling of "presence" (see Chapter 6). They also include
their consent form for others to use as a model.
Videoconferencing
at 512 kbps is the next best thing to being there. Taking into
account the cost of travel, it may be even better than being there.
The question is, how much bandwidth is close enough to being there?
NARBHA insisted on 512 kbps in order to administer the Abnormal
Involuntary Movement Scale. If not assessing for movement disorders,
however, that much bandwidth might not be necessary; one does not
need the Concorde to go to the grocery store. NARBHA plans to
experiment with portable telemedicine units that connect at 56 kbps,
i.e., over Plain Old Telephone Service (POTS) lines. That will be
like taking the bus, but that may be good enough. POTS is already
widely, if not universally, available in patients’ homes, so
patients will not even be tied to their local clinics. The Concorde,
like the VTEL TC2000, is of more limited application not only because
it is itself expensive, but also because it requires an expensive
infrastructure. A bus does not need an airport. Sometimes less is
more.
Case
Study: Chat Room Therapy
In
"Chat Room Therapy," Gary Stofle reviews the use of chat
rooms for individual e-therapy. He believes that to be competent at
e-therapy, it is necessary, but not sufficient, to be competent at
therapy in person, since "the methods of intervention must be
adapted to fit the methods of communication." He discusses how
both knowing who patients "really" are and protecting their
confidentiality are in some ways more difficult on line than in
person. He also rightly points out that e-therapy should not be held
to a higher standard than therapy in person. How many therapists ask
the patients they see in person for identification or have ironclad
office security?
Stofle
mentions three practical ways in which chat room therapy is different
from therapy in person: it is not obvious to third parties when the
therapist is with the patient, so the therapist is more easily
interrupted; the patient is not watching the therapist, so the
therapist is more easily distracted; and the delay, even if slight,
caused by having to type and to wait for transmission may lead to the
therapist and the patient getting "out of synch" (as can
happen on the telephone when connecting via satellite; even in
person, it may take time to absorb what someone says or to formulate
a response).
The
heart of the chapter is transcripts from three types of cases:
single-session, short-term, and long-term. Stofle proves to us that
psychotherapy can be done on line by doing it. He explores, empowers,
supports, gives hope, assesses suicidality, makes cognitive and
behavioral interventions, elucidates psychodynamics, and interprets.
We see that he can do what therapists do in person and that it has
therapeutic effects. His chat room patients share meaningful
feelings, face previously unfaced issues, and demonstrate insight.
Stofle
draws a parallel between nonverbal communication in person and
"nontextual" communication on line. Tone of voice provides
information in person, but is absent in a chat room. "Interaction
tempo" provides information in a chat room, but is absent in
e-mail. Word choice, however, provides information even in e-mail. It
is all a matter of degree, of the degree of experiential "richness"
(or technical bandwidth) of the medium. Expressive patients are
easier to get to know—whatever the modality. On line, they are
more "present," and therapists will have a greater sense of
"presence" with them. Other patients feel safer with more
distance and take longer to get to know—again, whatever the
modality. Some patients may also be more expressive in one medium
than another, e.g., Ainsworth (Chapter 10) says, "I write better
than I talk." There is also an intersubjective factor (Stern,
1985): the better the fit is between the therapist and the patient,
the more smoothly the process will proceed. Therapist selection is an
issue just as patient selection is.
A
nice example of "presence" is how Stofle refers to his
typing back and forth with his patients as "talking." At
least to some extent, he experienced it as being with them in person,
and, even reading now, so do we.
Guiding
Principles: Clinical
Peter
Yellowlees, in "Clinical Principles to Guide the Practice of
E-Therapy," says first that the Internet should be integrated
into real-world practice. Therapists should, for example, welcome
e-mail from patients (though not unconditionally). Yager sets a good
example of this. Yellowlees then puts forward four basic clinical
principles to guide e-therapy. E-therapists must be flexible and able
to integrate a wide variety of information and to work in a "24/7,"
global mode. E-therapists must be respectful of patients and allow
them to have a greater voice in shaping their treatments and to join
with them in more egalitarian therapeutic relationships. E-therapists
must be competent and possess both people and computer skills, be
aware of their own limitations, continue to educate themselves,
contribute to the field’s evidence base. E-therapists must be
responsible and, for example, accept, even encourage, requests for
second opinions and the keeping of transcripts of interactions. There
are also potential problems on line, including Internet addiction,
"cyberchondria," and deception by and questionable advice
from others, to which e-therapists should alert their patients.
Yellowlees
uses as an example of good e-therapy practice the system at Doctor
Global (www.doctorglobal.com). Automatic screening enables immediate
responses to serious problems, and quality "audits"
(reviews) maintain a high level of care. He sees the accountability
of e-therapists as essential and the further transition toward
self-care as inevitable. Emphasis will continue to shift from
professionals to self-help networks and friends and family, and from
the therapist as authority to the therapist as advisor and
collaborator.
The
goal of quality audits would, of course, be quality improvement, but
there are two sides to every coin, and the other side of this one may
be resentment by the audited therapists. We have seen this in the
U.S. with managed care. One hopes that lessons learned from auditing
costs will be applied to auditing quality.
Guiding
Principles: Ethical
In
"Suggested Principles of Professional Ethics for E-Therapy,"
I discuss some of the opportunities and dangers of e-therapy.
Guidelines may help both therapists and patients to chart ethical
courses of treatment. I review the development of various e-therapy
ethics guidelines and present a set of suggested principles produced
by a joint committee of the International Society for Mental Health
Online (ISMHO) and the Psychiatric Society for Informatics (PSI). The
members of the committee came from different countries and different
professional backgrounds; one of the co-chairs was a patient and not
a therapist. The suggested principles were intended to be broad
enough to be applied internationally and to the entire continuum of
e-therapy services. The development process was conducted completely
on line. Like NARBHA (Gibson, Morley, & Romeo-Wolff, chapter 5),
using electronic communication to bridge the distances separating
them enabled more members to participate and the work to be more
continuous, since members did not have to travel to collaborate in
person.
There
are three sets of suggested principles. The first has to do with
informed consent: the patient should be informed about the process,
the therapist, the potential risks and benefits, the safeguards that
the therapist takes and that the patient could take, and the
alternatives. The second set concerns "standard operating
procedure": e-therapy should be provided within the same
standard framework as therapy in person. The therapist should be
competent, legally allowed to practice (see Chapter 9), reach an
agreement with the patient on the frequency and cost of services,
adequately evaluate the patient, be mindful of other treatment
providers, protect the confidentiality of the patient, and maintain
records of the treatment. The third set deals with emergencies: the
procedures to follow in an emergency should be discussed, and if the
therapist and the patient are geographically separated, the therapist
should identify a local backup such as the patient’s primary
care physician. These principles should help guide e-therapists as
they develop their practices and e-patients as they select among
them. I have established a message board, Tele-Psycho-Babble
(www.dr-bob.org/babble/tele), to facilitate further discussion of
"distance" mental health.
Guiding
Principles: Legal
Nicolas
Terry, in "The Legal Implications of E-Therapy," reviews an
area that is rapidly changing and often mystifying, yet essential to
understand. He defines e-health and e-therapy, respectively, as the
use of technology to deliver health care services and the clinical
(as opposed to the "backend," or administrative) uses in
mental health. The "business-to-business" side of
e-therapy, consulting with other clinicians, is what he considers
telepsychiatry; its "business-to-consumer" counterpart is
direct patient care.
He
starts with a discussion of the impact of e-health on the overall
structure of the health care system. Rather than entering the health
care system at a single point, patients will now enter at multiple
points. The primary care physician gatekeeper will be rendered
obsolete, and regulation will also become "multipoint." For
example, a state may require not only therapists in that state, but
also therapists in other states who treat patients in that state, to
be licensed in that state. Or, to stay within its borders, a state
may require pharmacies in that state not just to require
prescriptions, but prescriptions issued on the basis of "valid"
doctor-patient relationships. What constitutes "valid"
relationships (or the "accepted medical practices" on which
such relationships might be based) is, of course, open to
interpretation. Obtaining a history is cited as an example of an
accepted medical practice. But what about obtaining a history over
the Internet?
Terry
breaks down the relevant legal issues into four groups: those having
to do with regulation, the therapist-client relationship, quality,
and security and privacy. Regulatory issues include licensure,
malpractice coverage, and the prescribing and dispensing of
medication. Licensure is complicated because federal, state, and
intrastate jurisdictions overlap, but in interstate B2B e-therapy,
licensure may be covered by specific telemedicine clauses. In
interstate B2C e-therapy, telemedicine statutes do not (currently)
apply. The key concept in licensure is the practice of a regulated
profession. States have the power to define those professions and may
include B2C e-therapy involving their residents. States also have the
power to regulate those practices, for example, by requiring
licenses, certificates, etc. E-therapists may of course hope that
distant states do not expend the resources to enforce their
regulations, or they may press for some form of national licensure
(or at least increased reciprocity between states). Though the law
may (and perhaps should) lag behind technology, it does eventually
adapt. Today, statutes are starting to address telemedicine; soon,
they will also deal with e-medicine.
Regarding
the therapist-patient relationship, one legal issue is when a
therapist-patient relationship is created. Malpractice hinges on such
a relationship; in its absence, a therapist is not liable for
negligence. Terry states that one does not have to practice medicine
to create a doctor-patient relationship, but also cites Miller v.
Sullivan, in which the court stated, "the relationship is
created when professional services are rendered and accepted for the
purposes of . . . treatment." A separate legal issue, once a
therapist-patient relationship has been established, is informed
consent, particularly regarding risks to confidentiality.
Technology
will raise the quality of care even in traditional practice. We will
see a decrease medical error and, at least in theory, "administrative
simplification." In e-health, quality of information is one
issue. Simply linking to other Web sites may be problematic. It is
more efficient than quoting or paraphrasing, but also increases the
possibility of conflicts of interest and liability for the linked-to
information (which, among other problems, may change without notice).
Malpractice-like actions may be difficult, but fraud and dangerous
products will continue to be targeted. The quality of care issue
Terry focuses on is the therapist’s Tarasoff duty (to protect
third parties) when patients are potentially violent. "Forum
selection" clauses may deter some litigation, but cultivating
realistic patient expectations is, in his view, more likely to be
effective.
Finally,
Terry discusses security and privacy. Security is keeping third
parties from "breaking in" and helping themselves to
information; privacy is not sharing information with third parties
without authorization. The Health Information Portability and
Accountability Act will have a major impact in both areas, at least
in the U.S. Of note are the rights of patients to correct and to know
who has accessed their records. Disclosure to public health and law
enforcement officials will be more relaxed, but there will be
increased responsibility for disclosures by business associates such
as billing or practice management companies.
It
could be argued that that the multipoint access to health care
services that e-health will bring will have advantages and
disadvantages analogous to the multipoint access to health
information that the Web has already brought (see Chapter 2). The
references in this chapter are links to the e-health and legal
literature, and many also include links to the Web. Although only
"plain" text here, the chapter is hypertext in spirit.
(Readers unfamiliar with legal citations may take advantage of the
parallel information explosion in the law and consult on-line guides
such as that provided by the Boston College Law Library, 1999.)
A
Patient’s Perspective
Martha
Ainsworth, in "My Life as an E-Patient," starts with a
review of the history of e-therapy, which she considers, more
narrowly than Terry, to include only ongoing dyadic relationships in
which all interactions are on line. She considers both the advent of
the dot-com e-clinics and the formation of ISMHO to be milestones in
the evolution of e-therapy. Both were in fact developmental or
evolutionary steps in that they involved the coming together of
individuals to form organizations.
She
then tells us about her own e-therapy. In some ways, her story is
like that of a traditional therapy patient. She was in pain, and she
was alone. She shopped around for a therapist. She wondered whom she
could trust. She chose someone and luckily, they clicked. She was not
instantly cured, but she was no longer alone and now had hope.
Her
e-therapist established a therapeutic frame (Bleger, 1967). She held
back, i.e., resisted. He sensed her moods, i.e., was empathic. Their
relationship deepened. He made comments; he interpreted. There was
transference, and there was healing. In other ways, it was very
different from therapy in person. Connecting from the safety of her
home (or at least her hotel room) and free from his physical
presence, she felt more secure, was less inhibited, and got more
quickly to the heart of the matter. The process was more
user-friendly; she "talked" to him when she wanted, she
"listened" to him when she wanted, and she didn’t
have to do both at the same time. Granted, more user-friendly is not
necessarily more therapeutic, but it is at least an example of the
flexibility that Yellowlees advocates.
Ainsworth
went on to establish Metanoia.org to share what she had learned with
others, i.e., to use the Internet to provide information. First, she
created a directory of e-therapists. She also conducted a survey and
presents some of that data here. Her sample was self-selected. Of 619
responses over four years, 73% had already tried e-therapy. Of those,
68% had never been in any kind of therapy before, 92% thought their
e-therapy had helped, and 64% went on to try therapy in person. That
68% tried e-therapy before therapy in person shows that it appealed
to some individuals. That 92% considered it helpful, but 64% went on
to therapy in person, is interesting. Without more complete data, it
is hard to know whether the e-therapy glass was more empty (64% did
not stay with e-therapy) or more full (64% were willing, after the
more user-friendly e-therapy experience, to try therapy in person).
Ainsworth
became alarmed by some of the responses she received and by some of
the e-therapy practices she found and decided not just to direct
patients toward e-therapy, but also to guide both them and
e-therapists down the trail she and her e-therapist had blazed. She
discusses the appropriateness of e-therapy, the competence (see
Chapters 6 and 7) and accessibility of the e-therapist, the cost of
the e-therapy, and the privacy of the e-patient.
Finally,
Ainsworth reflects on the evolution of e-therapy and notes that the
question has shifted from whether e-therapy should be provided to
how. Which e-therapists, for example, should treat which e-patients?
She does not claim that "true" psychotherapy can take place
on line and merely states that whatever it is called, it can be
tremendously helpful and will continue to be demanded. Her pragmatic
wish is that therapists who are qualified will provide it. She
appeals to other patients to speak out and to mental health
professionals to listen. The voices of patients may be softer on
line, coming from behind the "anonymity shield" and across
the gulf of cyberspace, so therapists not only need to, but to listen
closely.
Discussion
"E-therapy
is like an encyclopedia," said the first blind man. "Surely
we can agree on that."
"An
encyclopedia? E-therapy is Dear Abby!" answered the second blind
man.
"It's
an extra session, I tell you," insisted the third blind man.
"I'm
certain it's a telephone," said the fourth blind man.
"Magic
carpet. There's no doubt," said the fifth blind man.
Their
argument continued and their shouts grew louder and louder.
"Encyclopedia!"
"Dear Abby!" "Having a session whenever I want!"
"Telephone!" "Carpet!"
"STOP
SHOUTING!" called a very angry voice.
Licensure
(and regulation in general) can be a contentious issue. Stofle urges
us "not to recreate barriers to treatment that the Internet has
eliminated." Terry explains how licensure affects e-therapy, but
takes it as a given and does not attempt to justify it. The current
crazy quilt of state requirements is of course inconvenient for
e-therapists who would like to be able to treat patients from coast
to coast. Licensure, like a guardrail, does, however, serve a
purpose. Over-regulation would of course be undesirable, like just
closing the highway. But if the guardrail is removed while the
highway is being upgraded to a superhighway, it should be replaced—as
soon as it can be decided where exactly to locate it, since traffic
patterns might change. It may be paternalistic, but sometimes "pater"
does know best.
Gibson,
Morley, and Romeo-Wolff found that the patients liked telepsychiatry
more than the staff. Terry observed that more e-therapy Web sites
were run by masters-level therapists and clinical psychologists than
by psychiatrists. We might speculate that in terms of the number of
"early adopters" (Rogers, 1995) of e-therapy, there might
be more patients than masters-level therapists, more masters-level
therapists than clinical psychologists, and more clinical
psychologists than psychiatrists. Perhaps psychiatrists as a group
are the most conservative. Or perhaps they benefit the most from the
current system and so have the least incentive to change.
A
number of us comment on the tradeoffs of e-therapy. Ainsworth
(Chapter 10) felt more comfortable communicating by e-mail: "I
could reveal to him only as much as I felt comfortable revealing";
"the anonymity shield of cyberspace made me feel free."
Anonymity is powerful partly because of the shame and stigma that is
still—although thankfully not to the same extent as
before—associated with mental illness and mental health
treatment. Her therapist may not, however, have felt so comfortable;
in his very first e-mail, he started asking to talk to her on the
telephone. Even after they had established a solid connection and had
not only talked on the telephone but also met in person, she still
felt more comfortable on line. Not only is less information about the
patient available to the therapist, but also less information about
the therapist is available to the patient, and as Terry points out,
the therapist may seem less warm or, in Stofle’s terms, less
"present." Because meeting in person almost always means
the patient goes to the therapist, meeting on line, in more neutral
territory, is an example of the more egalitarian therapist-patient
relationship that Yellowlees refers to. Terry warns that if patients
have more autonomy, they may behave in more manipulative ways. Being
flexible, as recommended by Yellowlees, however, the therapist might
simply use that as grist for the therapeutic mill—as he or she
might if treating the patient in person.
Ainsworth
was not truly anonymous; her therapist knew who she was. The on-line
"anonymity shield" does, however, raise concerns. One of
the suggested ethical principles I discuss is that therapists should
not be anonymous. But what about patients? I refer to it as an
unresolved issue. If people are allowed to remain truly anonymous,
they feel even safer and more willing to open up. This phenomenon is
apparent in on-line communities like Psycho-Babble
(www.dr-bob.org/babble). What difference does it make if the
therapist does not know the patient’s name? It is not an issue
of contacting the patient, since the therapist would have the
patient’s e-mail address (it might change, but so might the
patient’s telephone number). One issue is that the patient, by
remaining anonymous, shifts the balance of power in the
therapist-patient relationship; now the patient knows who the
therapist is, but the therapist does not know who the patient is.
This may be appealing to the patient, given the underlying power
differential in other respects.
This
shift in power also has significant consequences in Tarasoff
situations. If the therapist does not know who the patient is, the
patient is also "safe" from involuntary hospitalization.
Stofle’s stance is that e-therapists need to accept that they
are powerless in the face of determinedly suicidal patients.
Presumably, the courts should also see e-therapists as powerless,
i.e., impose no Tarasoff duty on them. Therapists were only held
liable for the death of Tatiana Tarasoff because she was "readily
identifiable" as the potential victim (Tarasoff v. Regents,
1976). If a patient tells a therapist that he or she intends to go to
a random park and shoot a random person, the therapist may be
responsible for hospitalizing the patient or notifying the police,
but not for warning the victim. Stofle is clear that the e-therapist
should recommend appropriate treatment and decline to participate in
inappropriate treatment. Perhaps the e-therapist should not be held
responsible for protecting the patient from self-harm if the patient
is not readily identifiable. The parallel would be with an anonymous
patient who calls a hotline or an emergency room. It may be possible
to identify the e-patient with the cooperation of their Internet
service provider, but if efforts like that may be made, the patient
should be informed in advance.
A
more restrictive approach would be along the lines of the ISMHO/PSI
Suggested Principles: the e-therapist might know the patient only by
a pseudonym, but a local backup who knows who the patient is should
be involved and could try to hospitalize the patient involuntarily if
necessary.
Alternatively,
it could simply be considered unacceptable for e-therapists to treat
anonymous patients. That, however, would not demonstrate the
flexibility that Yellowlees encourages.
Practically
speaking, the patient identity problem will be solved on line to a
large extent as it is in person: as a byproduct of having to pay for
services. To pay, the patient will need, at least in the near term, a
credit card and, unless it is stolen, the credit card will identify
the patient. Stofle takes checks and uses PayPal (www.paypal.com), so
a checking account can be the source of funds, but a checking account
also identifies the patient, and PayPal divulges the name of the
payor to the payee. Online, one member of a household could pose as
another, since access to a credit card or a checking account might be
shared, and such a deception might be impossible in person, but at
least the household would be identified.
Security
may be worse on line in some ways, but may be better in others.
Communicating using a Web-based Secure Sockets Layer (SSL) system is
both secure and, since most Web browsers have SSL built in and no
extra software needs to be installed, user-friendly. Encrypting
transmissions from one person to another is a challenge because the
"key" must also be transmitted (and therefore itself
vulnerable to interception). When one encrypts information for one’s
own use, however, neither the information nor the key needs to be
transmitted, so the process is much more straightforward. And
encrypted patient files may be more secure than paper files locked in
a desk.
As
Yellowlees advises, e-therapy must pick up where traditional therapy
leaves off. It may, however, offer even more potential than he
envisions. The issue of anonymous patients has been addressed above.
What about answering questions "in a booth at a fair"? That
smacks of reading tealeaves more than modern evidence-based best
practices. Yet, as Kennedy discusses, access to information on line
has clearly been a boon to patients. Patient may now Ask Jeeves
(www.askjeeves.com), and Pies is an expert in a sort of virtual
booth. Pies does not, however, respond in "real time." If
someone like him did, would that not also be a valuable service?
AmericasDoctor (www.americasdoctor.com) used to make practitioners
available in chat rooms. What about an AmericasExpert? What matters
is not the setting (hospital, fair, or Internet), but the quality of
the service.
It
was the Rajah, awakened from his nap by the noisy argument.
"How
can each of you be so certain you are right?" asked the ruler.
The
five blind men considered the question. And then, knowing the Rajah
to be a very wise man, they said nothing at all.
"E-therapy
is very large," said the Rajah kindly, as he sat down at the
computer. "Each man touched only one part. Perhaps if you put
the parts together, you will see the truth. Now, let me surf in
peace."
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About the Author
Robert C Hsiung, M.D., is Deputy Medical Director of the Student Counseling and
Resource Service at the University of Chicago and an Assistant Professor of Psychiatry.
As 'Dr. Bob,' he runs a Web site out of the University of Chicago that provides a wide
range of mental health information.
ISBN: 0-393-70370-3
October, 2002
Paperback, 250 pages